This week, I spoke to a dear friend of ours from Athens where we had a chance to catch up on each other’s lives for a few minutes. During our conversation, he asked for an update on my health and reminded me that I had never posted the results of my latest MRI and doctors’ appointments. He said that he assumes no news is good news (which I hope all of you do as well) but missed seeing my updates. He also mentioned that he is reminded to pray for me when he sees my posts. I know so many people have been praying for us and that God has answered those prayers in spectacular ways. What follows is a long overdue medical update (which carries my deepest apologies for taking so long to share) and an update on some fun things that have had me distracted these past couple months.
Adam and I have sat through a lot of long procedures and a lot of long appointments over the years. After my MRI the other week, we had the shortest appointment we have ever had with one of my doctors. It lasted long enough for him to walk in the room, say three sentences to us, and send us on our way. If the three things he said to us this appointment are the only words we hear from him for the rest of my life, I will be just fine.
After reviewing my MRI, Dr. Robinson walked in the room and without even sitting down said “I don’t see any growth. The tumor appears stable. I’ll see you in a year.” That was it. Short, sweet, to the point, and all good news. I did ask him before he left if he would take a picture or two of my MRI so I could show Lydia (I’ve been in trouble for the last year for not getting any pictures after my 2017 MRI and would prefer to stay out of the doghouse for the next year). While my little buddy is still there, he is not causing any problems and showing no signs of life. Our hope is he will continue that way and we can go along our merry way together not causing each other any trouble.
Shot of my 2018 MRI
A couple weeks after my MRI and meeting with Dr. Robinson, I met with my neurologist, Dr. Williams. As has become my routine, I did not tell him anything about what Dr. Robinson said so he could look at my images with fresh eyes. He agreed with Dr. Robinson that there has been no growth and in a side by side comparison of my MRI from last year, said the tumor may actually be slightly smaller. Once again, all good news and directions to come see him after my next MRI in 2019.
With little to report on my scan, I took the opportunity to ask Dr. Williams for a little more feedback on my EEG from 2017. Since my seizure occurred while I was sleeping, I was curious if the test showed increased activity while I was asleep making the idea of me reducing my medication less risky. Unfortunately, this news was not what I hoped to hear. He said that I have seizure activity in my brain almost all the time leading him to believe that without medication I could have a seizure at any given moment. With this latest piece of information, we have decided to stop pursuing the idea of reducing the dosage of my medicine. The risks are too high and I have reached a place of acceptance with the routine of my daily dose. It isn’t ideal and my medication isn’t cheap, but it has kept me seizure free for almost three years with tolerable side effects and peace of mind that we wouldn’t want to sacrifice for a change that may or may not work.
All in all, great news and another deep sigh of relief which will last us until next year.
I mentioned earlier that the last couple months have had some distractions. Kids starting back to school, fall sports ramping up, and the end of the year fast approaching at work have kept our minds and our schedules busy. With all of that, Adam and I did find time for a much needed vacation to celebrate our 10th anniversary. Having been horrible about making time to get away in the past, we decided to splurge and take a week long trip to Excellence Playa Mujeres in Mexico. Everything I had heard about this place sounded too good to be true and it did not disappoint.
Sunrise view from our balcony that we got to enjoy every morning
During the planning of this absolute dream of a vacation, we decided to take advantage of a vow renewal ceremony the resort offered us. The plan was to renew our vows on the beach, but Mother Nature had some other plans so we opted for a ceremony in this adorable stone gazebo not far from our room. Honestly, it could not have been more perfect. These past few years the storms have raged, but I have had Adam by my side, holding my hand every step along the way. What better place for us to say “I did, I do, and I always will” than on a rainy day in paradise.
As is standard for me, I cried almost the entire time, but the moment Adam promised again to love me “in sickness and in health” I lost it. Ten years ago I trusted him when he said those words to me based on the man I believed he was. Now I trust him based on the man that I know he is. We’ve walked this unforeseen, unimaginable road and his love for me has never once faltered. I hope I am half the partner for him that he is for me and can someday repay him for all the love he has continually shown me.
Thank you all for your prayers and your patience as I have been slow in posting this update. Cheers to all of you and another year of uneventful updates as we continue on this amazing journey.